Endometriosis:

Additional Endometriosis Resources

 

Endometriosis Guide for Teens	Managing Pain, Activities, & Friendships
Endometriosis FAQ's	Pain & Symptom Tracker
Hormonal Therapy Options	Pain Mapping Worksheet
Continuous Hormone Pills	Endo, Nutrition, and Exercise
Continuous Hormone Pill FAQ's	Endometriosis and College Planning
Coping with Endo Pain	Glossary of Endo Terms
Managing Pain at School	Additional Endo Resources

 

Online Chats

 

The Center for Young Women’s Health

Chats are held monthly for young women (aged 13 to 22) with a confirmed diagnosis of endometriosis. The chats are moderated by a nurse specialist. Check the schedule and register to participate in a free online chat with other girls who have endometriosis.

 

Helpful Websites

 

Endo–Online: The Voice of the Endometriosis Association

USA Phone Number(s): 414–355–2200 | Toll Free: 800–992–9696

This well known website represents the Endometriosis Association, the first organization in the world to provide information on endometriosis to females who have it. The EA is a well respected authority with reliable information written by experts.

 

Endometriosis Research Center

USA Phone Number(s): 561– 274–7442 | Toll Free: 800–239–7280

The Endometriosis Research Center was founded in 1997 because of the limited research, support, education and awareness for endometriosis. The ERC strives to improve the quality of life for women and girls with endometriosis through their extensive programs and outreach efforts.

 

Helpful Books

 

Ballweg, Mary Lou, and The Endometriosis Association. Endometriosis—The Complete Reference for Taking Charge of Your Health. Mcgraw–Hill, 2003.

Written by the founder of the Endometriosis Association and expert clinicians, this book is packed with information about managing symptoms, medications, and alternative treatments. It is primarily geared towards adult women, however there is a chapter on "Teen Endometriosis" that would be helpful for parents, family members and friends, as well as health care providers and educators who advocate for teens.

 

Mills, Dian Shepperson MA, and Vernon, Michael PhD HCLD. Endometriosis: A Key to Healing Through Nutrition. Thorsons, 2002.

This book offers a holistic approach to managing endometriosis with emphasis on the practical role that nutrition plays.

 

Phillips, Robert, and Motta, Glenda. Coping with Endometriosis: A Practical Guide. Avery, 2000.This book addresses the psychological and emotional concerns related to endometriosis and offers practical ways to cope with chronic pain.

 

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Written by the CYWH Staff at Children's Hospital Boston

 

Updated: 3/29/2010