Center for Young Women's Health

MRKH:
A Guide for Parents and Guardians

 

current guideMRKH Helping your Daughter
Treatment Options Talking with Siblings
Accepting your Daughter's Diagnosis Commonly Asked Questions
Taking Care of Yourself  

Remember

  • MRKH is a congenital condition that affects the female reproductive system.
  • Girls with MRKH have normal ovaries, an absent or incomplete vagina, and no uterus or remnant uterus.
  • Females with MRKH can have biological children with a surrogate carrier.
Getting Treatment:
The Center for Congenital Anomalies of the Reproductive Tract at Boston Children's Hospital offers special services in the diagnosis and treatment of MRKH.

Learning that your daughter has MRKH may bring up many questions and emotions for parents. It's normal to be worried about how your daughter is coping and it's important to be aware of your own reactions to this news. Discussing issues such as puberty, reproduction, and sexuality is often challenging for parents. When your daughter is diagnosed with vaginal agenesis, you may feel overwhelmed with your own concerns, your lack of knowledge about the condition and how to discuss it with your daughter, your family, and her primary health care provider or pediatrician. This information guide is intended to help you to understand MRKH syndrome, answer your concerns, and help you support your daughter. Commonly asked questions and concerns are included at the end of this guide.

 

What is MRKH?

MRKH is a congenital condition of the female reproductive system that affects approximately 1 out of every 5000 females. Girls diagnosed with MRKH have vaginal agenesis, which refers to an absent or incomplete vagina. The uterus is also very small or absent. It's important to understand that young women with this syndrome are genetic females. They have normal ovaries and will experience puberty without having periods. MRKH is a syndrome that may or may not be associated with renal (kidney), skeletal, and hearing problems.

 

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Written and reviewed by the CYWH Staff at Boston Children's Hospital

 

Updated: 10/8/2013

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